What is your name and where are you from?
My name is Cebisile Nkosi. I am from Durban, South Africa.
When did you join the ACTG?
I joined the ACTG in 2012 and have been involved for the last 8 years.
Why did you get involved with the ACTG, and what are some of the things you’ve done as a member?
I’m involved because of family members who died from AIDS related complications. I lost four family members during my first year at university. I was studying marketing at the time and didn’t know much about HIV. My family members told me their stories and inspired me change my course of study to learn more about HIV, so I could help them. Now I am inspired to help others.
Describe your community.
I focus my energy on youth. Much of my advocacy work is aimed at helping youth who are impacted by unplanned pregnancies and perinatal HIV transmission.
My community also has problems with woonger (a drug) and antiretrovirals (ARVs). Many people have been robbed of their ARVs by people who are smoking woonger. It is hard for people to afford their treatments.
What are the most important treatment issues to your community?
Access to ARVs is the most pressing treatment issue in my community.
How do you want your work in the ACTG to be remembered?
I need to be remembered as someone who supported my family and community. I want to be remembered for making my community better than it was before, because of my involvement with the ACTG.
What are your future hopes for the ACTG and HIV research?
My hope is to get all of our communities the best treatment. My hope is to cure every illness and challenge we are facing. I hope the ACTG continues to help our communities be better than before—healthier, more knowledgeable, and more involved.